27 December 2009

Sunday ~ 27 December: Day 162

Greetings all my blog friends! It is way past time for an update. In some ways the last couple of months have been very eventful and in some ways they've seemed very stagnant. First I want to say that I am improving. That is the most important thing. But often it has been two steps forward, one step back and such.

My shoulder problem had gotten bad enough that they had to double my dose of oxycodone. I wasn't able to sit up at the computer or even think straight sometimes with the medication like that. So I decided to go see my chiropractor, who is also a Chinese medical practitioner. For the last six weeks I've been getting chiropractic treatments as well as electric shock acupuncture. I can't do regular acupuncture with the needles, as I can't risk infection through breaks in the skin. The great news is my shoulder is much better. I am actually able to go some days without taking any oxycodone at all. That's a big improvement from every four hours!

When I first came home I had little to no strength or stamina at all. If I went anywhere away from home I had to be pushed around in a wheelchair. Now I am able to go out and do some things. Abbey even took me to Costco the week before Christmas. I had to ride around in their motorised cart, but just being able to get out and do something like that was great. Still haven't been to the grocery store, though. The girls are doing that shopping for us.

The last time I was at Vanderbilt they started me on a new prophylactic antibiotic to help prevent PCP pneumonia. It had unpleasant side effects, so now I am off that. My digestive system really got messed up and I started getting a lot weaker. Still haven't got the stomach stuff quite right, but I feel better today than I have in over a month. Also, my last bone density scan showed that I have osteoporosis and need treatment for that. They are recommending Reclast, which you get by IV once a year. Apparently all the chemo really did a job on my bones. It doesn't help that osteoporosis runs in my family. The good news is that hopefully I will be able to rebuild bone tissue. My 22 year old donor marrow ought to help with that, I should think! LOL.

My next appointment is this Thursday, the 31st. I'll have tests and some treatments. I also see the eye doctor to check on the graft vs host disease in my eyes. They seem to be doing a lot better, so I believe that treatment is working well.

I do find myself getting impatient with my limitations. They told me it could take a year or more before my strength gets back to normal. Often though, you hear words like that without really comprehending how it affects everyday life. I still haven't been able to stand up and cook a meal for us. The most I have done was yesterday morning when I made the sauce for Creole Shrimp. I think I may bring a stool to the kitchen to sit on and try to cook. Chopping veggies makes me tired and I'm not able to pick up the Staub and Le Crueset pots because they are too heavy. But as Mike pointed out, I am so much better off than I was this time last year. This year I even managed to send out our Christmas cards, which I was not able to do last year for the first time in my life. I need to work on having more patience.

Everyone's thoughts and prayers have been so much appreciated by both me and my family. I thank all of you from the bottom of my heart.


namasté,
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9 comments:

monica said...

Glad to hear you are doing well. It will take time but it will be well worth it. My husbad still has not regained all his strength but he did have a surgery after his transplant. You will continue to be in my prayers

JyLnC said...

It takes awhile to regain your strength. After my mastectomy and reconstruction it took forever for me to be able to even lift my right arm up over my head and forget having any strength.

I am an independent person and it was so frustrating to be dependent on my dh and ds to lift things for me. It was about 8 months before I was allowed to lift more than five pounds because of the reconstruction. I slowly adapted to the new restrictions and I slowly regained my stamina and abilities.

Four years later I still smile when I'm able to reach both of my arms behind my back to hook my bra. That was a great day when I could do that again. Hang in there and I'm glad you are improving day by day. ((Hugs))

Sweetpeamommie said...

Hi Becky,

I was so relieved to read your post! I have been checking on you everyday hoping for some word. I am the sister of the woman who had MDS but she wasn't as lucky as you; we lost her November 21st. You are in my prayers everyday, even though we don't know each other...I feel close to you because of my sister, Ann.
((Hugs))

Nancy

Susan said...

I don't know you at all, except, of course, through your blog. I have followed you with great interest and with prayers that you will regain all your strength. So good to have you post again. God Bless and may 2010 be the best year yet for you.

Anonymous said...

I was so glad to see your post that I gasped in joy! I am glad that you are doing better. Take care of yourself and I will continue to check for updates.
Peggy

Thibeault's Table said...

Becky, I'm glad you posted an update. I've been checking in every week hoping that you would post. I'm glad that you are starting to gain some of your strength back. I'll continue to check in and hope the New Year brings you added strength and good health. Take care.

Ann

Cora @ Cora Cooks said...

Oh! Becky, you don't know how happy I am to find your post here with an update. I've checked here often and thought about you everyday, hoping you were getting along. My fondest hope for the New Year is your continued recovery. Stay strong and stay in touch when you are up to it.
Love,
Cora

Anonymous said...

So wonderful to see you posting again. I have missed you. I am so happy to read you are doing better. Hope you get wonderful news from Vanderbuilt today.
Likestoread

Mary said...

I just stopped by to wish a Happy New Year. I hope 2010 brings you health and even more happiness. Know that many of us have been thinking of you and have included you in our prayers. Blessings...Mary