14 July 2009

Tuesday: Day -4

Mike got up and made coffee this morning. I wasn't as dizzy from last night's Dilantin, so I had a cup and took my Nexium before we went on over to the clinic. Once we got there, Mike got me a Venti coffee from Starbucks and a blueberry scone. The medical part of the day started out pretty much the same as usual - get vitals, have blood drawn, etc. Got the Zofran (anti-nausea), Decadron (the steroid), Fludarabine (the chemo), Busulfan (the other chemo) and fluids. Also had my daily visit with Donna and Dr. Kassim.

Allish, the dietician came to see me. Guess what? I can cook with nuts. And roast nuts myself. Now that is what my common sense said anyway. Turns out Allish was reared on homeopathy, herbs and Bach flower remedies. I'm shocked she's in the traditional medical system with that background. But we had a nice conversation about such things. Then she wanted to know had I been to any energy healers. At that point I told her about my friend Patti, who graduated from Barbara Brennan's school. When Patti did an energy healing on me about 18 months or so ago she told me she was not feeling an immediate healing, but that she was feeling a lot of heat and a whole new matrix being formed. That was way before a bone marrow transplant was even being talked about, much less considered. Since then, Mike and I have both wondered if Patti was getting precognition of the transplant - my whole new matrix from which I would be healed. I am choosing to think of it that way.

My blood counts were low today. I had to take potassium and get a platelet transfusion. I did get a little nauseous and dizzy for a bit, so they gave me an IV Atavan. That knocked me right out and I wasn't dizzy or sick feeling anymore. It was 2:00ish before we left the clinic.

Tomorrow morning I have to check into the hospital at 7:30a. We went and scouted out how to get to the main entrance from the outside so I don't have to walk so far. Then we went over to Blackstone's Brewery and Grill for lunch. I ordered the Fish & Chips with brewed iced tea (can't drink sun tea) and Mike got Ribs with Fries. We both shared. The fish batter was made with their pale ale and the ribs sauce was made with a porter. Both were very good. I particularly liked that the fish were not at all greasy. Cole slaw came with both meals, but that is not something I can eat out now.

Back to the apartment to sleep while Mike went to the grocery. I'm supposed to keep hard candy and sunscreen on hand at all times. Have to put on the sunscreen when I go outside and use the hard candy to help keep my mouth from getting dry.

We are getting ready to go out to dinner at Rhumba. Still the same caveats about being safe and what not to eat. And I'm happy to see we are going to get both the restaurants in before I check in tomorrow. I've had my Levaquin already and will get tonight's Dilantin when I get ready for bed. Tomorrow I'll take Nexium before leaving the apartment, then all drugs will be up to the hospital.

13 July 2009

The Men's Room - Art Deco in The Hermitage






The Men's Room>
By popular request, men and women alike in the Nashville area have asked that we preserve this Men’s Room and restore it back to its original Art Deco lustre. Remodelled and reconfigured in the 1930s, this room has been the site of several music videos and numerous legislative deals. The colour scheme has encouraged as many women as men to look inside.


See, it was OK for me to go in!!! On Sunday Kiki and Mark came up to bring my Reiki Voodoo doll and have lunch with Sally and me. Well, I don't know if they originally intended to eat lunch with us, but that's how it worked out. And it was really nice. I'll post about the meal with the other food posts I have planned. Kiki and Mark like to stay at The Hermitage when they come to Nashville. It is a old luxury hotel that still knows the meaning of service. (Kiki is particularly fond of the bath concierge.)

Knowing how much I love Art Deco, after we ate, they said I needed to go to see The Hermitage so I could see the Men's Room. OMG, what a fabulous space! The ambiance envelops you the minute you walk in. It has black and green glass walls, complete with all washroom accoutrements, including shoe shine stands.


There is a row of green pedestal lavatories on the right when you walk in:


The shoeshine stands are in front of you to the left. To the far left are the toilet stalls, complete with green and black toilets.


And a close-up of one stall:


Urinals are opposite the shoe shine stands - also green:


I have never seen urinals like that before, but I must admit I have never spent as much time in a men's room before either! This is such a beautiful room and it's still a working bathroom, though fit to be a museum exhibit. And it is kept spotless. Women go in as long as it is not in use. I love those walls and am trying to think of some way to incorporate coloured glass walls into the powder room of the new house. Will use my own handpainted art deco style pedestal sink, but I think this type wall would be a real showstopper!

Monday: Day -5

This morning I woke up feeling really light headed and sort of slow moving from last night's Dilantin. Sally and I did not make coffee here, so I just took my Nexium and we went on over to the clinic. Thank goodness for the Starbuck's there. The medical part of the day started out pretty much the same as usual - get vitals, have blood drawn, etc. Got the Zofran (anti-nausea), Decadron (the steroid) and Fludarabine (the chemo), today added Busulfan and fluids. Also had my daily visit with Donna and Dr. Kassim. My blood counts were good enough that I did not have to have any transfusions today.

My friend, Sheri, had called yesterday on her way home to Mississippi from the HLCCA Conference in Pittsburgh. She was bringing me some conference goodies and made her route home work to come through Nashville. Then she called this morning to let us know where she was and about when she would be here. I was already in treatment, so Sally went to meet her and get the boxes. Sheri is just the sweetest person! And I was THRILLED with my conference goodies. I so appreciate that she took the time to come through here. Friends are indeed special. Tomorrow I want to open my boxes and make some photos.

Busulfan takes three hours to infuse so I did not get finished today until around 1:00p. Just before I was getting ready to leave, Mike called to let us know he was here and coming to the clinic. (Needed a key to get in the apartment.) So he met us, got the key and came back to the apartment to work. Sally and I (with instructions from Donna that I could not drive and if we went in a convertible the top had to be up - Sacriledge I tell you) went back to the Jaguar/Porsche dealership. We took the Jag S Series for a test drive. It's a very nice car. Sally is thinking about it. It takes a long time because the salesmen all have to do their spiel. And then the manager has to come do his spiel. By the time the Jag time was over, I didn't really feel up to going out in the Porsche. And I couldn't drive anyway. So we went off to an antique mall instead.

Yesterday I mentioned that the midcentury shop was gone from 8th Avenue. That was incorrect. It is not gone, but it is very different. The store was divided into three sections. Once has now become vintage clothes, one is mostly empty with some newly re-made midcentury icon lamps and clocks, and the main section does have some stuff. Seemed pretty empty, though. I got some vintage recipe books that had Harlequin and Fiesta in the photos. Also a vintage menu of a Turner-like flamingo print, a tablecloth and a couple of tea towels. There was an antique mall across the street. All it yielded were some huckweaving tea towels and art deco perfume bottles.

By the time we got back home it was after 4:00. Once again I was really tired and somewhat dizzy, so after Sally left, I went to bed. Mike woke me up around 8:00, but I couldn't get myself in gear to go to dinner. Instead he fixed me some scrambled eggs and toast. Took my Levaquin before supper and another dose of Dilantin about an hour ago. I'm feeling a bit dizzy again, so I think I will go back to bed.

Update on Sunday: Day -6

After not sleeping well Saturday night, I came home and crashed after being in the clinic yesterday. Sunday was the day I had to have a loading dose of Dilantin (900mg) before starting Busulfan today. Dilantin is an anti-seizure drug. The loading dose is huge, so side effects are common. Most people get very dizzy and are known to fall. It had to be taken in 3 doses, 3 hours apart, starting at 4:00 yesterday evening.

I was 15 minutes late getting started, but that was not a problem. Sally had to really wake me up to get me to take the first dose. Then I went right back to sleep. When I woke up for the second dose at 7:00 I managed to stay awake. Last dose was at 10:00p. I have been dizzy from this drug. The top of my head feels swishy. If you are familiar with the motion of the old waterbeds from the 1970s, that is the best way I know to describe it.

Because of my dizziness and the storms in Nashville last night we did not go out to eat. I really want to try Rhumba, so maybe Mike and I can go tonight. Blackstone’s Brewery and Grill is also on our list. Two more nights till I check into the hospital and two more restaurants at the top of our list. Hoping those will work out. But, in the spirit of giving a dinner report, I had cottage cheese (4% milk fat – boy did I feel decadent) crackers, iced tea and a Twinkie for dessert. My mind is having an odd time wrapping around this diet!

Mike is on his way up here to Nashville after making it safely back home last night. Sally is going to hang around so she and I can go test drive the Jag this afternoon. Donna says I can't drive taking the Dilantin, but I can ride. And if I go in a convertible I have to go TOP UP!!! Sacrilege, I tell you. Sacrilege.

Slept a little better last night and will give today's report later.

Monday meme

Here's what you're supposed to do. Copy this entire note and paste into a new one that you can post. Change all the answers so that they apply to you. Then send this to lots of people you know, including the person that sent it to you. Some of you may get this several times...that means you have lots of friends. Be sure to send this back to me too! I want to see your answers!

I'm posting this instead of sending a lot of separate e-mails. Feel free to do the same.


1. What is your occupation? wife, mom

2. What color are your socks right now? I'm not wearing any, but my Crocs are pink!

3. What are you listening to right now? the sounds of silence

4. What was the last thing that you ate? nighttime pills

5. Can you drive a stick shift? absolutely

6. If you were a crayon, what color would you be? red

7. Last person you spoke to on the phone? Mike

8. Do you like the person who sent this to you? Yes

9. How old are you today? 54

10. Favorite drink? unsweetened iced tea

11. What is your favorite sport to watch? figure skating

12. Have you ever colored your hair? oh yes. Used to get it highlighted all the time in college. Then just recently got it highlighted in Coca Cola Red.

13. What is your full name? I'd rather not say

14. Favorite food? fresh garden tomatoes

15. Last movie you watched? part of one of the Pirates movies

16. Favorite Day of the year? no idea

17. What do you do to vent anger? meditate

18. What was your favorite toy as a child? either Kenner Easy Bake Oven or my original Barbie doll from 1959

19. What is your favorite season? Summer

20. Hugs or kisses? yes

21. Cherry or Blueberry? cherry

22. Do you want your friends to post back? up to them

23. Who is most likely to respond? no idea

24. Who is least likely to respond? another no idea

26. When was the last time you cried? this afternoon talking with my niece

27. What is on the floor of your closet? suitcase, camera bag, box

28. Who is the friend you have had the longest that you are sending this to? I'd guess Mary Beth

29. Who is the friend you have known the shortest that you are sending this to? not sure

30. Favorite smells? fresh herbs - basil in particular, fresh baking bread, daffodils, hyancinths, magnolias, roses

31. Inspires You? beauty

32. What are you afraid of? Not a lot. Physical pain, I guess.

33. Plain, cheese or spicy hamburgers? I don't eat burgers made of beef, so it depends on what kind I am having.

34. Favorite car I like? Porsche convertible. I hope to test drive one or two this afternoon.

35. Favorite cat breed? Siamese

36. Number of keys on your key ring? I keep two keyrings. The one I always carry with me has my car key and my flipper to open the car. The other ring has more than I can remember and I'm not getting out of bed to find it and count them right now.

37. How many years at your current job? wife - 31 years, Mom - 22 years (almost)

38. Favorite day of the week? Wednesday

39. How many states have you lived in? 4

40. Favorite dog breed? I think I would like an Italian greyhound.

41. Favorite nickname? If I ever become a grandmother, I would like to be called Mimi.

12 July 2009

Peach Sticky Buns



The Best Breakfast Rolls

Originally this recipe came from my dear friend and neighbour, Barb. She called them Sticky Buns and used frozen bread dough. Both of our spouses went to work early and we were home with the babies. Often times one of us would make some variation and then call the other to come over for coffee and breakfast. I most often use my grandmother's recipe for Ice Box Rolls to make the Breakfast Rolls, but decided to try a different dough today.

As I couldn't sleep last night I went to the kitchen so as not to disturb Sally. Abbey had brought me my breadmaker and a question on one of the foodie boards had reminded me of a recipe I first learned as Moomie's Buns. Ellen Dill (now Ellen Dorsey) posted the roll recipe years ago on the King Arthur Flour Baking Circle. She has changed the recipe to call it Ellen's Famous Burger Buns . With this dough you can make all kinds of wonderful buns and rolls. I typically use it for hamburger style buns, but decided to try the dough this morning for sticky buns. And I chose to make Peach Sticky Buns because my Mom had made some homemade Peach Jam with peaches that Steve, my BIL, brought back from Louisiana last week.

Dough turned out of breadmaker onto counter:


Rolled and spread with my Mom's homemade peach jam.


Rolled up as for jelly roll.

Baked


Turned out on pizza tray because I didn't think to bring a serving dish.


And served on Harlequin reissue plates, with coffee in Fiesta mugs.


To make the Peach Sticky Buns, use variation #2.
Sticky Buns, aka The Best Breakfast Rolls

1 recipe Ellen's Famous Buns dough
¼ cup butter
½ cup packed light brown sugar
2 Tbsp light corn syrup
¾ cup chopped pecans
3 Tbsp butter
¼ cup sugar
2 tsp cinnamon

Make dough ahead of time in breadmaker. Preheat oven to 375ºF. In a 9" cake pan combine butter, brown sugar, and corn syrup. Place in oven to melt. Meanwhile, roll dough out to 12x18 rectangle and brush with 2 Tbsp. butter. Combine sugar and cinnamon. Sprinkle over dough. Roll tightly like a jelly roll, beginning at 12" edge. Cut into 12 slices.

Turn off oven and stir mixture in cake pan. Sprinkle on the nuts. Lay rolls, cut side down in pan and brush tops with remaining butter. Cover and let rise till doubled. Bake at 375ºF for 25 minutes or until browned. Invert onto large platter and cool. Don't let the rolls stay in the pan to cool or the brown sugar mixture will glue them to the pan.

Variation:
1. Change brown sugar to white. Substitute grated coconut for pecans and replace cinnamon sugar mixture with orange marmalade.
2. For peach buns, spread the rolled rectangle of dough with an 8oz jar of peach jam or preserves. Replace pecans with slivered almonds.

Ellen's Famous Buns

1 cup water
2 Tbsp butter or oil
1 egg
1/4 cup sugar
1 tsp salt
3 1/4 cups flour
1 Tbsp instant yeast

Place all ingredients in the bucket of your bread machine in the order given. Select dough cycle. Press start. Allow machine to complete it's cycle. In my bread machine this takes 1 hour 40 minutes.

Turn dough onto a lightly floured surface.
To make hamburger or hot dog buns: Divide into 8 pieces. Take each piece, and slap it, hard! Flatten into hamburger or hot dog bun shapes. The dough can also be divided into 16 pieces to make sliders. Place on greased cookie sheets. Cover, let rise 40 to 45 minutes.

Preheat oven to 375º. Bake buns for 12 to 15 minutes til golden. Remove to wire racks to cool. They are fabulous for any favorite sandwich filling!

Alternatively, use the dough to make sticky buns and prepare as directed.


Also see Sticky Cinnamon Buns and Cinnamon Roll Lamb.

Sunday: Day -6

Couldn't sleep last night. Probably due to the two cups of coffee I had with dessert at Tayst last night. Sooo, what's a girl to do? Abbey had brought me my bread maker, so I put in a batch of dough to make, then made Peach Almond Sticky Rolls for breakfast this morning. My Mom had made Peach Jam last week from the peaches Steve (Mike's brother and Sally's spouse) had brought back from Louisiana the weekend before. Mom sent me a couple of jars of it, so I used one for the filling in the rolls. I used slivered almonds for the nuts in the sticky part. Boy were they tasty!

Something has happened to my Palm PDA. This is a real problem as our entire family lives our lives from what's on my Palm. It seemed to be with the handheld as it wouldn't HotSync on either computer. Sally is going to see if she can do a hard reset on it today whilst I'm getting my treatment and hopefully that will fix it.

The medical part of the day started out pretty much the same as usual, with the exception of starting to take Nexium when I got up this morning. Then over to the to OTU clinic, get vitals, have blood drawn, etc. Got the Zofran (anti-nausea), Decadron (the steroid) and Fludarabine (the chemo) and fluids. Also had my daily visit with CRNP (Kelly, as Donna was off today) and Dr. Kassim. My platelets were below 10, (have I mentioned Vanderbilt doesn't tell you how low when you are below 10? Just that you are below), so I had to get a unit of those. My Tuesday bag was 637 ccs, the largest bag I've ever seen. Today's bag was only 197 ccs. It goes in a lot quicker. I like that they pump platelets here. At home they just drip and it takes a long time. Also got to do without IV Benadryl. Tonight I will need to continue to take Levaquin (antibiotic). With the weekend labs and getting the platelets we were 12:30ish getting away from clinic.

I asked about continuing to go out to eat and have been told that is fine as long as I feel like it. I just have to follow the guidelines. This can continue until I go in the hospital Wednesday morning. When I get out of the hospital I will have had the transplant and must stay protected until engraftment happens. That should take 2 to 3 weeks. Once I'm engrafted and my blood counts start coming up so that I am not neutropenic, we can talk about going out to eat again. I'm of the opinion we should take advantage of all possiblities ahead of time. LOL.

Kiki and her husband, Mark, came up to bring us my Reiki Voodoo doll. We went out to lunch and had a lovely time. The place we went is a bbq place downtown called Ribby's. We ate out on the second floor patio and watched all the tourists down below. We got two orders of the Hog Platter and sides of baked beans for all. This would have been the dieticion's idea of heaven. Can we all say, "ANIMAL PROTEIN"? There were ribs, sausage, chicken wings, pork tenderloin, pickles, peppers and blocks of cheddar cheese. I am sure Mike will like this place. Then we went and played tourist at The Hermatige. And I got loads of pics of the Men's Restroom. I promise to post pics and an explanation later.

There are severe thunderstorms going on around here now. Penny sized hail and winds up to 60mph. If the weather permits we are heading out to Rhumba for dinner tonight. "Tropical flair combines with top notch Latin, Asian and Caribbean cuisine where globe trotting tastes have found a home." Rhumba is another locally owned restaurant in the West End and we are looking forward to dining there. Hopefully we can go a bit earlier tonight. A new episode of The Next Food Network Star is on at 9:00. For some reason I've been watching again this year and I hate to miss one. And I'm told that rush hour ends earlier on Sunday night. And I'm telling you. Sally is forgetting how to be a grandmother hanging out with me. Going out to fine dining every night and eating continental hours is something she hasn't been used to lately. But she is a great sport and willing to try out all kinds of new things with me. We really are having fun. It's nice for us to have some time like this. At home we seem to stay busy with so many other things instead of having sister time. If the weather is bad, we will just make something exciting at home instead.

Now I am off to work on photos.

11 July 2009

Saturday: Day -7

Different routine at the apartment this morning. Last night I slept better than any night here yet. Maybe because we were all up pretty late. This apartment must be locked with the key from outside. Abbey and Donnie decided they would get up and leave when Sally and I were going over to the clinic.

Because I had guests, I got up early to make the coffee and bake some cinnamon rolls. I admit it. They were Pillsbury. One was the plain cinnamon rolls and one was the orange Danish. Sally and I bought the orange Danish for old time's sake. Often on Sunday morning when we were growing up, my Mom would bake a pan of each of these for us to have for breakfast before going to Sunday school. I hadn't had any of the orange Danish in many years. Don't even recall seeing them in the stores at home. Well, I have to say we did not think they were very tasty at all. We all agreed that if we were at my Mom's and she baked them, we would eat one, but none of us would want to buy them again. I don't even know if my Mom buys them anymore. Funny how things work out like that.

So we all left the apartment around 7:40. There was absolutely zero traffic this morning and only one other car in Vandy's Central Garage handicapped parking. Wow! I've never seen it like that before. The medical part of the day started out pretty much the same as usual. Go to OTU clinic, get vitals, have blood drawn, etc. My potassium was fine today, so my fluid intake could go back to normal. Got the Zofran (anti-nausea), Decadron (the steroid) and Fludarabine (the chemo) and fluids, but still not as much as the first day. Also had my daily visit with CRNP (another new one as Donna was off today) and Dr. Kassim. Tonight I will need to continue to take Levaquin (antibiotic) and start Nexium (to prevent acid reflux) in the morning. Labs took longer since it was the weekend and it was 11:30ish when we left the clinic.

Sally and I came home and had some more coffee, planning to go to lunch around 1:00 and then go check out an antique mall. Well, I fell asleep and Sally woke me up around 2:00. It took me a bit to get in gear so we actually left around 2:45. We drove over to the Tennessee Antique Mall on Wedgewood. It's pretty much a straight shot east and we were there in about 10 minutes. I like going antiquing with my sister. We kind of amble along, looking at whatever takes our fancy.

There was one booth today that was full of vintage kitchen stuff. Everything in there was marked 60% off. We probably picked up more than we should, but I got a great bargain there! Back in the 1990s one of the liscensed Fiesta go-alongs were some cookie presses. This booth had one of the periwinkle Dancing Ladies with the plate imprint for the press. These have gone for upwards of $100 on eBay. The one today was marked $8.00. With 60% off, that came to a measly $3.20. How could I pass that by???? Also found several cookbooks that featured Fiesta, Harlequin and Riviera in the photographs and a couple of vintage food ads that had Fiesta and Wells Art Glaze dishes. I also bought myself a vintage pin cushion and some pins. Didn't think to bring anything like that with me and those are something I find myself using pretty regularly. Sally found some fun things, too.

When we were checking out, there was a 20something girl in line behind us buying different vintage teacups. Her name is Anna. She had promised her aunt she would have a tea party for her sometime this year and the aunt had been asking. Anna had no teacups and had come to find some pretty mis-matched ones and really scored. The four sets she chose were lovely. We had a nice conversation about teas, what to serve, how to make the tea, etc. Turns out Anna works in the psych department at Vandy and says she's going to come visit me when I'm able to have visitors at the clinic or in hospital. I think she wants to talk more about tea and recipes. My sister gave her the impression I am knowledgeable about such things. LOL. I am going to print out my scone recipe for her. She's also planning to make homemade crumpets, and I get to vicariously enjoy the tea party. I love meeting people like that. So many young people do not seem to be interested in such things now (my DDs being exceptions, of course), so it was a joy to chat with her. And I loved that she had gone to live in France for a year where she learned everything doesn't have to be matchy-matchy. Hence the mismatched cups for tea.

The last thing I bought for myself was a great vintage red and white summer straw hat with a red veil. It was to wear in honour of the Hat Ladies. This weekend is the Annual HLCCA Conference and tonight is the banquet. For the Saturday night banquet people dress up in vintage clothing. There is even an award for Best Costume. This started some seven or eight years ago when Matt, the president of the organization, asked me if I would dress up and encourage others to do so. That year I wore my grandmother's black silk 1940s cocktail dress trimmed with rhinestones and a coordinating vintage hat, and won the award. At that same conference, a group of ladies decided that although they couldn't get costumes together in time for the event, they would wear vintage hats. They all sat at the same table for dinner and collectively were called The Hat Ladies. The Hat Ladies are a fixture every year. I am sort of a step-hat lady as I was not one of the originals. We got some very sad news last week. One of the original hat ladies (about my age or so, I would guess) crossed over. She had the most beautiful smile and was always fun to be with. Cinda, I will miss you.

As we were nearing the end of the antique store visit I got a call from DD#2. She and Mike had made it to the hotel in Durham and Mike's Explorer was broken. As she didn't sound too terribly distraught, I did not think any crash or something equally disastrous had taken place. And I was right. Apparently the AC had stopped working about 1/3 of the way through the trip. Then about 20 miles outside Durham, the vehicle started making a loud noise. Mike seems to think it has something to do with belts and the AC.

He had come up with several options. The first involved staying in Durham and seeing if the Ford place there could fix it. He wasn't really keen on that as he might not get back here before I have to go in the hospital on Wednesday. Second option was to drive to Nashville and take the Explorer to a Ford place here on Monday. We would be carless until his is repaired. That may or may not work, depending on how well I keep doing. Third option was to drive back home tomorrow after getting DD settled at Duke if Sally could stay an extra night with me. Luckily Sally had already blocked off the time to do this. (But she would have changed her plans anyway. I truly have the best sister in the world.) Then Mike could take his Explorer to the Ford place at home and drive my car up to Nashville. The only drawback to this is that if the belt system is damaged and breaks, Mike might get stuck in Podunk, NC, TN or AL with no transportation.

I told him I was OK with whichever option he chose, so of course he is going for #3. If he does get stuck in Podunk, he has his cell, can call AAA and hopefully Abbey can go rescue him. Let's all keep our fingers crossed for a successful Sunday trip!

On the way home Sally and I decided to go down 8th and see if all the antique stores were still there. This used to be a mecca for them. Oh my goodness. I was so disappointed. The Art Deco Shoppe had changed to a mostly midcentury shop several years ago and I still loved shopping there. It is totally gone! There were a couple of the shops still there, but most are history. We're going to see if we can find out if they have just moved or what. And may still go check out the ones that are still there tomorrow afternoon.

Just a little further down 8th is the Jaguar, Porsche, Audi dealer. In my Dallas days, whenever my 100LS needed repair, I used to go test drive the Porsches. I haven't done that in years. Sally and I figured since we were driving Mom's Jag they wouldn't think we were deadbeats and would let us do some test driving. We were right. Even though they were closing up shop, one of the salesmen came out and talked with us and offered to let us drive anything we wanted. It was late though, so we decided to try to go back Monday afternoon, if I am up to it. And there was a very cute little mint green S Series Jag (2006 model) at an extremely inexpensive price that caught Sally's eye. Less than the used Grand Cherokees that I have been looking at online for DD#2. I told Sally maybe I should see about getting DD the little green Jag, but how would I ever be able to explain that to Mike????? Plus, there is something just WRONG with the idea of getting a Jag for a 16 year old. Still, it is an awfully good price. The downturn of the economy is hitting everywhere I guess. Even in luxury used cars.

After all that, we needed Starbucks! On the way we passed by a brown road sign that said Belmont Mansion and decided to check it out. The mansion is on the site of Belmont University and it is Italianate in style. We made a few photos and decided this is a place we can come for me to do some of my walking. There are lots of photo ops. Finally made it to Starbucks where a venti coffee with a shot of espresso and a blueberry scone worked a great pick me up. And I really needed it. I was very tired when we got home and just flopped into the lounge chair with my blanket my friend Annie knitted for me. Stayed in the same spot until it was time to go to late dinner.

Tonight's restaurant of choice was Tayst. We are attempting to patronise the locally owned places whenever possible. Tayst is Nashville's only certified Green Restaurant and is just a few blocks down 21st Avenue from us. When I called to check times, they told me they left the doors open for arrivals until 11:00 and that the kitchen stayed open to serve all diners. This sounded very good as we had read they have the best crème brûlée in town. I also asked if there was a dress code because several websites said it was dressy. I told her all we had to wear were casual clothes and she said there was no dress code. Come in jeans if we want. So we did. But we wore stylish jeans. With appropriately cute tops and jewelry, of course.

I love this restaurant. The menu changes regulary depending on which farms supply what. There is a blackboard with a listing of all the local farms providing the food for the day. And there is an extensive wine list (not local). The chefs have wines paired with all foods, but of course you are free to choose any you like. I had to stick with tea, but Sally enjoyed her wine of choice. The menu is set up as First Tayst (appetizers), Second Tayst (salads), and Third Tayst (entrées). Sally made sure the kitchen would not close before she could order the crème brûlée.

Our waiter was superb. I had to explain that I have these diet restrictions and he made wonderful suggestions and was very accommodating. For our First Tayst we ordered the Artisanal Cheese Board. We omitted the bleu and the soft, and made sure the other cheeses were from pasturised milk. The board was a green marble tile. Our cheeses were a semi soft French cheese, that I have forgotten the name of and Manchego. To go with those was an olive tapenade, an onion balsamic jam, homemade melba toasts and mixed nuts (slivered almonds, Marcona almonds, pistachios and candied walnuts) in a pomegranate sauce. Quite good! I really like cheese courses.

For Second Taste we chose the Grilled Tomato Salad. This was slices of heirloom tomatoes (Green Zebra, Black Krim, and a yellow I'm not sure about) that were grilled and topped with a basil gelee. They were quite delicious! Have I ever mentioned I love fresh summer tomatoes? Particularly heirlooms?

Third Tayst we each ordered our own entrée. Sally picked grilled pork tenderloin served with potato gnocchi and topped with a cucumber/bell pepper coulis. I chose trout with mimolette stoneground grits and marinated ramps. My trout came topped with flash fried carrot tops which made a lovely presentation. Both of these were absolutely divine. I would love to learn how they made their gnocchi. Those dumplings were some of the best I ever tasted.

Last, but not least: crème brûlée with coffee. The restaurant makes their own half and half daily. But they had run out of whole milk. Instead they brought us little pitchers of half and half and foamed heavy cream. I'm telling you, these people know how to treat you! By this point Sally and I decided we should share dessert and it was a good idea. Not sure I would say it was the best crème brûlée I ever had, but it was VERY GOOD. We will definitely go back to Tayst again while I am in Nashville. I'm sure Mike will like it, too!

My niece and Sally's daughter, Kiki, is coming up tomorrow. She's bringing me my Reiki voodoo doll that she got for me in New Orleans. Somehow it had gotten left at my house and as it is especially intentioned for my healing, it needs to be here with me. Not sure what time she is coming, but maybe in time to go to late lunch with us. We will call her and find out sometime in the morning.

10 July 2009

Friday: Day -8

We had a little bit of a change today. My caretakers did a swap. DD#2 is going to Duke this weekend for the TIP program. She has to check-in Sunday morning, so Mike will be taking her over on Saturday. ETD between 7:00 & 8:00 in the morning. Therefore, Mike went home this afternoon after Sally arrived here to take care of me.

Also, now that I know I don't have to be NPO, I got to have my morning coffee. It just makes the morning start out better. But when we got to the clinic, Mike got us coffee from Starbucks again, too. Only a grande today. Explanation in next paragraph.

The medical part of the day started out pretty much the same as yesterday. Go to OTU clinic, get vitals, have blood drawn, etc. My potassium was low so I got a "horse pill", as my Mom would say, to take care of that. I was also retaining fluid, so they cut down the amount I'm getting through IV and told me not to drink so much. Another weird thing. Ever since I was pregnant with Abbey (22 yrs now) I have drunk lots of water during the day. More than the recommended 8 glasses. Not reaching for a glass all day was strange! And I had to have a smaller coffee. Got the Zofran (anti-nausea), Decadron (the steroid) and Fludarabine (the chemo) and some fluids, but not as much as the day before. Also had my daily visit with CRNP (new one as Donna was off today) and Dr. Kassim.

Because Vanderbilt is a teaching and research facility, there are all sorts of studies going on all the time. The study nurse had talked with me a while back to see if I would be interested in participating. There are three current research projects to which I could contribute. If there is anything that I can do that might help future patients, I am more than glad to do it, if possible. Mainly it requires giving blood samples and they will not do anything that is detrimental to me. So I signed up for all three. WELL. Talk about a surprise. They had to draw one vial of blood that holds 12 Tbsp. It was humongous. I wasn't sure I had that much! One of the nurses said, "It's not really that much." I laughed and said, "I'm a cook. 12 Tbsp is 3/4 of a cup. That's a LOT!" They use that large vial to extract white cells. It will only be drawn once a month, so I'm still happy to participate. (And the good thing is a patient can always change their mind about being in a study.)

As I wasn't getting as much fluid I got done more quickly than the day before. We were out of the clinic before 11:00. My physical therapy appointment wasn't until 1:00, so Mike and I went back to our home away from home for lunch. One of my new diet rules is that I cannot eat leftovers that are more than 24 hours old. I decided to just have some cheese toast and and a glass of milk. If I had to, I don't think I could tell you the last time I drank a glass of whole milk. I always buy 2%. But attempting to get in as much animal protein as possible, and remembering the dietician particularly mentioned full fat cheese and milk, I poured myself a glass of milk to go with my toast. My system was just not used to that. After lunch I felt slightly nauseous, but a Compazine tablet quickly fixed that.

At 1:00 I was back for my Physical Therapy assessment. Mainly they wanted to do some testing to see what I am currently capable of doing. In yoga I have always been told that if you have done the postures when you are young, your muscles always remember. Unfortunately I have not been able to go to yoga classes for nearly two years and have not been very good about doing the routines on my own at home. I had to do a stretch test: stand next to a wall where a long tape measure was attached. Do not touch the wall. Bend at waist with arm next to wall extended. No bending knees. Arm has to remain parallel to floor and back has to stay flat. Oh I did good with this one. I could reach past the end of the measuring tape! Yea for Yoga! I also had to stand balanced on one foot (both feet separately) and be timed. Yoga to the rescue again! I just assumed Mountain Pose and finally she had to tell me to put my foot down. Then I had to walk laps in couple of different tests. One of them was to see how far I could go in six minutes. Got 13 laps for that one. No idea if that is considered good or bad. Maybe neither. It just gives them a starting point for me should I need therapy during the time after the transplant when the drugs will be doing some of their worst.

Sally got here about 1:30ish and by 2:30ish Mike was on his way home to get packed for the trip to Duke. It's not like he could just throw a few clothes in a bag, grab his computer and go. Keep in mind this includes packing the car with all the things a teenager needs for a month away from home. Including a box fan as the dorms at Duke are not air-conditioned. I think they got done about 10:30 or 11:00p.

In the wee hour of the morning I had e-mailed Abbey about a computer program. She and Donnie were talking about it and he suggested they come up after he got off work and bring it to me. Oh how fun! I get to see my babies. Abbey also went over to the house and picked up a few things for me that I had forgotten to mention to Sally. This included some Fiesta mosaic pieces for decoration. (I will try to make some photos of those making my home away from home more normal when I get back to the apartment.)

After I finished at OTU for the day, Sally and I went to Harris Teeter to pick up a few necessities. This included ingredients to make Donnie a pineapple upside down cake. I had promised to make him one over a month ago and had not gotten a chance to do it yet. I also picked up a nice Pyrex dish with red handles to bake it in and send home with Abbey to keep. After we got things up from the car and unloaded we started on the cake and it got done just before the kids arrived.

I had asked if I could go to a restaurant last night, since I was having company. The answer was sure with a few caveats: Go at an off peak time. Wear my mask when going in and out of the building, or to the restroom, or anytime I would have to be around a lot of people. Abbey and Donnie got here around 6:30. Donnie got my programs loaded and helped me get a bunch of stuff out of the start menu of my new little red notebook so it will run better. Not knowing when peak time ends in the West End on Friday night, we left the apartment about 8:30. The Tin Angel was our choice as Abbey & Donnie had not yet been there. Those people are beginning to consider Mike and me regulars. It was still quite croweded with a wait list, but they tried to get us in more quickly so I didn't have to sit amongst lots of people. I thought that was very nice of them.

We had fun with the menu. First they have an extensive wine list. Alcohol is no longer something I can consume, but Sally and Abbey had a great time with the waitress getting recommendations and tasting several different wines before choosing a bottle Greuner (sp?) from Austria. They really liked it. Fruity, but not sweet. Donnie ordered a shiraz by the glass - one of their popular ones called Shoo Fly. One of these days I will get to play with such things again.

We ordered a trio of appetizers to share: Smoked Duck Breast & Manchego Quesadilla with Mole & Pico de Gallo, Fried Green Tomatoes with Horseradish Sauce, and Bruschetta Duo topped with Sun Dried Tomato Tapenade and Olive Tapenade. We enjoyed all of them, but all of us agreed the Duck Quesadilla was the best. I made pics, but haven't processed them yet.

Entrées were all different, too. Abbey had Cha Cha Chicken (grilled breast halves accompanied by baked sweet potato and sesame haricots verts), Sally had Steak Frites (some kind of dead cow cut in strips, grilled and topped with a brown sauce and each sliced piece topped with a piece of grilled asparagus, accompanied by a huge pile of homemade shoestring French fries), Donnie had Chicken Schnitzel (two flattened breast halves accompanied by garlic mashed potatoes and fresh steamed broccoli) and I chose Inside Out Eggplant Parmegiano with fresh Marinara and grilled onion, bell pepper and tomato. Abbey thought her chicken had a little too much pepper, but Donnie liked it a lot. Abbey liked his better so they traded. I loved my eggplant! I knew I would though, because I had tasted a bite when DD#2 ordered it last weekend. Sally thought her steak was good, too. (I'm sure the asparagus had to help it! LOL) I did try one of her fries and they were very good. The garlic mashed potatoes are one of the best sides. Just delicious. They also do a wonderful job with all their preparations of fresh veggies. It's no wonder we continue to love this restaurant! By the time all the entrées were consumed, the kitchen had closed. We could still get all the desserts except crème brûlée. Since that is what our table had planned on ordering, we decided to come back and get coffee and dessert one afternoon.

It was around 10:30 when we got home. Abbey and Donnie decided to spend the night and leave when Sally & I left for my treatment Saturday morning. Their weekend plans include going to Birmingham to the zoo and checking out Smith and Hawken and Williams Sonoma over at the Summit on Saturday. Smith and Hawken announced this week that they are going out of business and the catalogue operation ceased immediately a couple of days ago. Abbey is going to see if they have a couple of items a friend and I wanted.

After some hilarity trying to figure out the sofa bed and making it up with flat twin sheets (they left us no doubles) we all hit the sack after a most fun evening.

09 July 2009

Thursday: Day -9

Went over to the OTU clinic about 7:40. Started out by getting vitals, and had blood taken for tests. Then had a bag of fluids connected to my Picc line. After those ran for a few, I got a bag of Zofran (anti-nausea) added. At that point I was also given an oral dose of steroid. When the Zofran was all infused the IV switched back to fluids for a bit. Then came the bag of chemo drug. They are giving me Fludarabine to start with. After that finished I was back on fluids for about an hour. During all this Donna, and my day nurse, Carol, came over and discussed various things with me, including all possible side effects of all the drugs.

I hadn't eaten anything before I went over as I wasn't sure of the protocol. Fortunately there is a Starbucks located in the Courtyard Cafe, so Mike went to get us each a venti coffee of the day and a cheese Danish. We learned a new trick. We normally get the bold coffee. They were out and instead of having Mike wait for a new pot to brew the barista suggested a shot of espresso into the regular coffee. That actually tasted pretty good. A worthy substitute.

Alish, the dietician, also came over for a chat. I am a problem. Or maybe just a challenge. Most people who come here for treatment are not foodies. They get a set of simple basic instructions and it's easy for most of them. Add to being a foodie the fact that I was a Home Ec major with lots of food and nutrition classes. I need to know how to apply that knowledge to my current situation.

One of the things you can't have is black pepper. So I asked about cayenne. Pine nuts are not on either list of yes you can eat or no you can't eat. She is off investigating them for me. I can have roasted nuts, but not raw nuts. So I asked did I need to buy nuts already roasted or could I roast them myself. She's off investigating that, too. I can put raw nuts in things that are going to be baked, such as banana bread or one of my favourite veggie entrées, Walnut Roast.

Even though biologically tomatoes are a fruit, she wants them to be a vegetable. The difference here is that at home I can eat raw fruit (other than berries) if it has been well washed. All vegetables have to be cooked. (I forgot to ask why on that, but will find out Friday.) That's why pine nuts came up. I have this really great baked tomato recipe that has pine nuts in the topping.

Apparently I can eat frozen berries. When I said, oh good, I put up blueberries from our bushes. Nope, can't eat those. Only commercially frozen berries because those are flash frozen at super cold temperatures. She didn't realise she had needed to point that out, as she hadn't run into anyone who froze their own berries.

She wants me to eat lots of animal protein. I asked about some of my vegetarian protein dishes. Answer, animal protein makes it easier to get all the essential amino acids. Duh? I know that. I wasn't a vegetarian for 12 years for nothing. And even though I went back to eating fish and some poultry, even going so far this last month to add pork back in, I am not eating any dead cows. I still like a lot of my vegetarian main dishes.

I don't mean to be a problem. But putting together the guidelines I got with the way I cook needs more clarification. Too many things are not covered in the guidelines.

She tells me getting in the calories will be the most important thing. Eat and drink full fat everything. Things I should eat a lot of: cottage cheese, ricotta cheese, milk, ice cream, cheddar cheese, mozzarella cheese, Monterey Jack cheese, canned chicken, canned or frozen beans and corn. She told Mike that he will really have to encourage me to eat. I don't think that I have ever in my life had to be encouraged to eat, but this is new territory. LOL. At the end of our conversation she told me I can go back to eating healthy after all this is over. C'est la vie. I want to do everything as right as I can.

When you are going to be in the OTU at lunchtime the patient is provided with a sack lunch. They gave me a list of sandwiches from which to choose. Sandwiches come on wheat bread and I picked chicken salad. It didn't occur to me until after I was eating it that there was celery in the chicken salad. Now I'm a bit confused about why my dietary guidelines say no raw vegetables, yet they served me raw celery. Will ask about that Friday.

Got all finished and the last thing was my visit with Dr. Kassim. I do like him. There are six transplant doctors and they work on two week shifts. I will see whoever is on call every day that I am at the OTU clinic or in the hospital.

This is pretty much going to be my schedule through Saturday. Everything was finished around noon. Friday I will have a session with Physical Therapy. They need to test my activity level so I'm going to wear some comfy jeans and my Mickey Crocs. On Sunday they will add another drug, so I will be there longer.

I have to say that so far, so good. I have started the new diet and have not begun to have any of the side effects yet.

Apparently I will have many drugs to take orally at home. Donna went ahead and wrote all the prescriptions today. There is an in-house pharmacy, but it takes them a while to get things filled. Mike and I went downstairs to check on them and they said it would be at least another half an hour to get them done. There were 10 different prescriptions and they gave me a month's worth of each. Some of them I don't start taking until later in the program. All these drugs filled up a brown paper bag the size of a grocery store large paper bag!

I can no longer take Tylenol or any painkiller with Tylenol, because of the very real possibility of liver damage when it's combined with all these other things. That means my pain medication had to change from hydrocodone to OxyContin. This is for the pain in my shoulder that may require rotator cuff surgery when I am well from the transplant. We are hopeful the steroids may help as well, since they work as an anti-inflammatory. I do not like to take narcotics unless it is absolutely necessary. I would have taken one on Wednesday night though, as my shoulder was keeping me from sleeping.

Another drug I had to start now is Levaquin (antibiotic). It is given proactively to help prevent any infections, etc. I take that every night. I've also got a prescription for Compazene in case I need something for nausea.

I think that about covered everything for the first day!

08 July 2009

Latest news and a day off!

Yesterday I went to the clinic expecting to get labs, see Donna (my CRNP), see the transplant doctor, get platelets and come home. Well, my morning labs had my platelets still at 11,000 - the same as they were on Monday. That was highly unusual. I had not gotten a transfusion of platelets on Monday. Instead I had gotten two units of red cells. So they planned to wait to give me platelets until Thursday. The doc decided that since my platelets were so low and since my Picc line has been working fine, that I would not get a Hickman catheter. Didn't want to take chances on excess bleeding. So they sent me off and said they would see me on Thursday for the first dose of chemo.

Mike and I came back to the apartment and were talking about how to spend my day and a half off, when we got a phone call from Donna. It turns out my donor is an International Donor. She had just gotten some paperwork that I had to sign. (International donors require more paperwork, of course.) So I'm excited. Dr. Kassim had told me I'd know about my donor by what accent I started speaking with after transplant. (I really like him.) So, international - now I'm gonna be EXOTIC. Mike and I decided to walk over to the clinic. There's a pedestrian bridge that goes over 21st Street so it was easy to do. Once I got there I tried to find out the country. Nope. No can do. So now I'm also gonna be MYSTERIOUS. I also had to give three more vials of blood.

We decided to grab a bite to eat in the Courtyard Cafe to check it out. (They make very good roasted red potatoes, btw.) We had to walk out back past the hematology unit and Donna was so happy to see us. Apparently her assistant didn't realise they'd already run platelets on me and had run them on one of the three vials I had given just before lunch. Now my platelets were down to 10,000. As it was up to me, and I decided to go ahead and get a transfusion so I could enjoy my Wednesday off. Donna and Mike were both relieved.

The bag of platelets they sent me was the largest bag any of us, including the nurses in the unit, had ever seen. Took over an hour and a half to infuse. Near the end Donna came by and said, "Oh, btw, this is the last bag of O+ platelets you will get." Of course I wanted to know why. Well, it turns out my donor has A positive blood. Not only am I going to be 22, EXOTIC and MYSTERIOUS, but I'm also going to be A PLUS. What a deal! LOL

Months ago when I was first exploring the idea of a transplant, I told Mike I needed the bone marrow of a 22 year old, and that I hoped they were A positive. This donor and I were meant to be!

Because my donor is male, from now on my genetic karyotype will be male. The girls and I were laughing about how will we explain how two male A+ parents produced two female O+ offspring. I am totally fascinated with the whole of what happens after transplants. I read a very interesting book called A Change of Heart, by Claire Sylvia. She has a heart/lung transplant and after recovery started having various changes in her life. She craved foods she never wanted before. Her personality changed somewhat. Not completely, but she did and thought things she never thought before. After much searching she found out who her donor was and met his family. It turned out that the changes she experienced were all things that were associated with her 18yo donor. Obviously bone marrow is not the same as organs, but I wonder if other things besides my karyotype and blood type will change. Oh, and my age, of course!

This morning, on my day off, we slept late and then spent a leisurely, lazy morning. Around lunchtime we went out to eat at Cheesecake Factory (I'd been craving their salad with roasted beets and goat cheese) and grocery shopping. I got a chance to explore Trader Joe's. It's right next to The Mall at Green Hills. One of the things we bought was a box of miniature heirloom tomatoes. Had those for dinner and they were delish! We also went to Harris Teeter, which will be our regular grocery store. It's a two story store. Don't think I've ever taken an elevator with my grocery cart before. But we managed to find everything we needed except pasteurised honey. (One of my diet restrictions.) Mike will get some of that at Publix when he's home Friday. It was nice to go out shopping, but I was pretty much exhausted when we got home.

Not sure if I am going to be able to sleep tonight or not. In more ways than one, Tomorrow IS the first day of the rest of my life.